Has any body had to deal with hydrocephalus? - FMVperformance.com : The site for all your Ford Mazda and Volvo needs
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post #1 of 16 (permalink) Old 11-02-2008, 12:13 PM Thread Starter
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Has any body had to deal with hydrocephalus?

First the good news. My wife and I found out in July that we are expecting a baby . But at 19 weeks, he was diagnosed with hydrocephalus, or fluid on the brain. At the time of diagnosis, he was a mild to moderate case. Now at 22 weeks he is a moderate case measuring at 19. Has anybody here had to deal with this, or know someone who has? It's not too common, about 1 in 500 are diagnosed with it.

Now the scary part is that the prenatal specialist said we can still terminate in our lovely state of Michigan until 24 weeks. That is not an option for either my wife or myself. In his current condition, our baby has a 30-40% chance of having some serious complications, such as blindness, deafness, or Cerebral palsy. We are going to get a second opinion within the next two weeks to see what our options are.

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post #2 of 16 (permalink) Old 11-02-2008, 12:19 PM
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Re: Has any body had to deal with hydrocephalus?

No advice. Just checking in to sincerely wish you luck.
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post #3 of 16 (permalink) Old 11-02-2008, 01:41 PM
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Re: Has any body had to deal with hydrocephalus?

Any more details? Where is the block, ventricles?

If I remember right, I think surgeons can implant a bypass to drain the fluid.


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post #4 of 16 (permalink) Old 11-02-2008, 01:52 PM
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Re: Has any body had to deal with hydrocephalus?

[quote author=Saitech link=topic=127306.msg2716438#msg2716438 date=1225651310]
Any more details? Where is the block, ventricles?

If I remember right, I think surgeons can implant a bypass to drain the fluid.
[/quote]

It's called a VP shunt (ventrical -> peritoneal)

[quote author=fatabbot link=topic=127306.msg2716333#msg2716333 date=1225646375]
No advice. Just checking in to sincerely wish you luck.
[/quote]

+ 1,000,000,000,000,000

When my wife was about ........ oh 20 weeks pregnant (to make up a number) she had an abnormal lab value come back which gave her an increased risk of neural tube defects..... basically birth defects involving the brain, spinal cord, etc. Luckily everything turned out fine, but I understand how you're feeling. Good luck to you both.


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post #5 of 16 (permalink) Old 11-02-2008, 06:36 PM Thread Starter
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Re: Has any body had to deal with hydrocephalus?

thanks for the reply's and support everyone. We are going to see a pediatric neurosurgeon pretty soon, so that we can setup surgery after birth. The use of shunt has been discussed, and sounds like what we will need to do. As for the blockage, I'm not 100% but I believe it is the ventricle's.

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post #6 of 16 (permalink) Old 11-03-2008, 08:50 AM
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Re: Has any body had to deal with hydrocephalus?

My thoughts are certainly with you, your wife and your child.
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post #7 of 16 (permalink) Old 11-03-2008, 04:24 PM
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Re: Has any body had to deal with hydrocephalus?

i know what you are going thru. my son was born 3 months early(only 3 lbs. at birth). he was diagonsed with nunins syndrom. he has developmental issuses and is in need of open heart surgery. he is now four and the doctors still wont do the surgery. it is all nerve racking. but hang in there and you will all hopefully make it thru this. all my prayers are with you and your family

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post #8 of 16 (permalink) Old 11-03-2008, 04:33 PM
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Re: Has any body had to deal with hydrocephalus?

I was never diagnosed with Hydrocephalus, but had something very much like it after brain surgery for Arnold-Chiari Malformation. Essentially, spinal fluid was building up inside my brain "sack," so they modded me with a Peritoneal-Lumbar shunt that drained spinal fluid from the bottom of my spinal canal into my abdomen, where it just gets absorbed by the rest of the body since it's basically just sugar water.

From my experience, the shunt is a pretty good idea. I don't notice it ever, and they said as long as I don't have any problems, I'll probably have it the rest of my life.

I hope whatever you decide, it works out for you and your expected bundle of joy!


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post #9 of 16 (permalink) Old 11-03-2008, 09:59 PM Thread Starter
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Re: Has any body had to deal with hydrocephalus?

thank you for your insight, Irish_ayes. We are seeing a neurosurgeon Wednesday, wish us luck

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post #10 of 16 (permalink) Old 11-04-2008, 10:21 AM
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Re: Has any body had to deal with hydrocephalus?

[quote author=irish_ayes link=topic=127306.msg2719036#msg2719036 date=1225748000]
I was never diagnosed with Hydrocephalus, but had something very much like it after brain surgery for Arnold-Chiari Malformation. Essentially, spinal fluid was building up inside my brain "sack," so they modded me with a Peritoneal-Lumbar shunt that drained spinal fluid from the bottom of my spinal canal into my abdomen, where it just gets absorbed by the rest of the body since it's basically just sugar water.

From my experience, the shunt is a pretty good idea. I don't notice it ever, and they said as long as I don't have any problems, I'll probably have it the rest of my life.

I hope whatever you decide, it works out for you and your expected bundle of joy!
[/quote]

The technical term would be meninges though "brain sack" does have a nice ring to it.


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